Friday, Sept. 9th- Shitty day. Mom was in and out (mostly out) all day long. The pastor came to see her and so did a lady from church (she sat with her while i went to the dentist). Tim and Shelli came over for awhile and she was still out of it. Im not sure as to why because she really didnt have any extra pain meds besides her patch until later in the night. Her ileostomy bag has been changed 4 times today too. Because she isnt eating solids, the output is all liquid, which dissolves the barrier and then leaks and makes a mess. Ive done like 4 loads of clothes today because her sheets, nightgown, pillow cases, pillows, etc all need to be washed each time this happens. I have tried every trick i know to get them to stay on and they just wont. Its frustrating.
Then, she was supposed to go to 16 hr TPN instead of 24 hr. They delivered the supplies and a new programmed pump. As i was connecting it, the pump wasnt working properly and blood started back flowing. Luckily, I knew to use a heprin flush to prevent clots. I called a nurse who made me try a few different things, none of which worked. So, I hooked it back up to the 24 hr pump, which worked. Now tomorrow we will have another pump delivered and a nurse will come out to make sure its working. Another pain in the ass. Mom was annoyed and said, "I dont know why they think you can do all this".... as if it was my fault. I didnt even say anything.
Well, thats all for now.